LBnuke

My brain has not been cooperating lately, but thankfully it seems to be taking a turn for the better these past couple of days.

Yesterday was the first day I was feeling good enough to get out of the house since Saturday, not including short trips to the BART station. Went to the library in the morning and helped my friend D move stuff in the afternoon. Amazing how a little fresh air can make everything better. The good company didn’t hurt either

When my brain is not working, it is very hard to get out of the house because I can not organize and implement the steps needed in order to leave the house. Things that should be happening automatically do not. Instead, it becomes a complex, often insurmountable task.

Steps needed to leave the house:

1. Remember that you are going to leave the house
2. Stop what you are doing
3. Get ready to leave
• Put on jacket, gloves, etc.
• Bring anything that is needed, i.e. backpack, library card
4. Don’t get sidetracked
5. Don’t start working again because you forgot you were going out
6. Think about destination or at least what direction to head out in
7. Don’t answer the phone because your client has a “quick question”.
8. If you do answer the phone, read the email, etc., do not think “This is easy. I will do it real fast before I leave.” because that will place you back at step 1.
9. Don’t get sidetracked
10. Say goodbye to cats and walk out the door

Speaking of being sidetracked, I almost forgot the 4 good things.

Good thing #1: K, aka Nikkyo, dings 70!

Congratulations K! We can finally quest together for real. Woo hoo

Good thing #2:
Renaeden’s repost of The Top Ten Terrific Traits of Autistic People.

Thanks Renaeden!

Good thing #3: FaceBook In Reality
Got a link to this in an email this morning. Cracked me up.

Good thing #4
Did I mention that I got out of the house yesterday? Old news by now. Good thing #4 is that I am going again out as soon as I complete the 10 steps listed above

Locked in my room. Loud in my head. Friends outside. I hear them laughing but I can not join them. I tried. Very bad. So hard to separate their voices. K, Lorena, Tess. It is Tess’ birthday. Happy bday Tess.

Makes me tired. I can feel every speck of dust in the air. Hear it. Sometimes see it. Like a million tiny lightening bolts, each giving me a tiny little sting. Freak.

Why can’t I just have fun like normal people?

Do or do not. There is no Try.
–Yoda

I am not a Jedi, so I suppose those words were not meant for me, but from what I can tell, trying = effort and everything takes effort. Therefore, there is a try.

Went to another aspie meeting on Sunday. Not sure if I liked it or not. It was nice to see the people I knew from the other meetings and meet the new people. Other than that, it was just like hanging out with any other group of people. That was very disappointing. It started out okay. A go around introduction. Not the kind of thing I generally like, but in a group like this, it seemed appropriate.

I usually like hanging out with other autistic types because different rules apply to social interaction than with most other people. At the group on Sunday, this was not the case for most of the meeting. After the go around, things got very disorganized. People were having back and forth mini-conversations, changing the topic, and generally having a “normal” group interaction. I can not do that most of the time, especially with people I do not know very well. One of the main reasons I even went to the meeting was to get a break from that kind of thing.

I am not sure how I would make it better next time. About half the people in the group did not seem to have a problem with how things were going, and the other half did not speak very much, if at all. The group leader is a great guy and he did make an attempt at giving the quiet folks a chance to speak. I appreciated it, but could not think fast enough when the opportunity was given.

It makes me worry that I will never be able to have comfortable social interactions. I like people and can usually talk with someone about a topic that I know a lot about like computers. I can process information about computers quickly. It is a language I understand.

I can not keep up with a conversation that changes focus and has no order. I do not know the rules of speaking in a group. When do I say something? Usually I try to wait until someone is done speaking, but almost always, someone else says something before I can. I hear things delayed, so there is no way for me speak right when someone else stops speaking.

It is also hard for me to say what is in my head when it is my turn to speak. The words get stuck and my mind goes blank. It takes so much effort to even spit out a basic outline of what I was thinking. I can’t just do it, Yoda. I can try. Once in a while it works. Always, it is exhausting.

The words jumble and crash in my head. I have software that lets me create flowchart-like images of what is in my mind. At the click of a button, the software will immediately turn it into a formal outline. I wish I could install that software in my brain. Do other people have a natural ability to do this? Is it something they learn? Do they already think in straight lines and not even need this software?

I will probably try another meeting. I wish I could think of a way to make it easier. I think part of the purpose of the group is to practice social interaction in an environment where others will understand the pauses and silences.

I appreciate the fact that I do not have to speak if I don’t want to. I usually don’t want to. But it is not because I don’t have anything to say. It is because I lack the ability to make my voice speak for my brain. It frustrates me terribly and even causes me to question Yoda. If Yoda does not have the answer, who does?

Maybe that is an unfair title. I think that most of the time, I am not an idiot. But there are a few things that I am repeatedly stupid about and no matter how many identically bad experiences I have, I do the same thing over and over again.

The first thing is having too many things going on at once. It does very bad things to me, but I think it is unavoidable. To stop it, I would need to stop working and learn how to be happy being even more broke than I already am. I am lucky to have help from people and be able to live a good life, but I want to be able to contribute my fair share. Plus, I am a geek and geeking costs money.

The second thing is insanely undercharging for my work. I learn things from one time to the next and try to avoid past mistakes, but it still happens almost every time. I am working on a project now that has easily taken 10x as long as I thought it would, and I was already providing a huge discount. I love the site and I really enjoy working with the client, but I am making about $2/hr. again. It is my own fault too. I was happy to provide the discount. In a short amount of time, the site was created and most of the content entered.

The organization had wanted a lot of features but did not have the budget for them. I provided a list of things that could be done for their budget and all was good.

Right around that same time, I started working on another site for an organization of a similar size and with similar needs. This organization had found a great online solution that would do everything my client wanted for a relatively small monthly fee. I told him about it and we switched the project over to the new system. My job was to design the site, build the template, and add content from the old site.

This is where I become an idiot.

I did not charge extra for this even though the site was practically finished in the original system. Why not? Because I thought that it was my “fault” that we switched systems because I suggested it. I am pretty sure that does not make any sense.

As I look at the itemized estimate that I sent, I realize that I had completely forgotten about it. The estimate was great. Stated exactly what was included and what was not and how much it would cost for things that were not included.

Since the price was so low, template customization was not included beyond the very basics. This was reinforced under the ‘Assumptions’ part of the estimate which states that the design is not custom. Since then, I have customized several templates heavily and built the final one from scratch, including custom images. I also threw in a flash slideshow.

I am very happy with the site and so is my client. There is still more work to be done, but it is near the end. I did not charge him extra for anything. I had told him that I would let him know if something would cost extra. Somehow, it never occurred to me to do this.

I like my client and his organization and knew they were on a budget. There is a part of me that really wants the site to be as good as possible with whatever system we are using, and that part of me took over the job. I could have stayed with the first system and never even mentioned the new one. The site would have been exactly what he contracted for. I also could have suggested converting to the new system as a separate project with a new estimate. I did not do either of those things.

I am confused. At this point, I am sure that the only chance I have of working is to work for myself. I am lucky to love what I do and to be good at it, but how long will I keep working for $2/hr.? All of my clients make way more money than I do and I doubt any would consider working for that price. I don’t know what to do. Everybody I talk to has tons of “Why don’t you just…” solutions. They make it sound so easy, but it is not. If I could just… I would!

Rehab might pay for me to take a 10 week business course with a “tutor” to come with me and translate afterwards. I wonder if that will help. I can barely imagine being in a class for 3 hrs. twice a week plus time with the tutor, but I feel like I have to try if given the opportunity.

K is very busy at work too. We have 4 sets of houseguests coming in the next 4 months. More things, but it will be nice to see everyone. I hope I can get all of my work done by then. Not likely since my folks are coming on Friday. Oy. I better get back to work now.

It is so hard to do things lately. Too hard. Hard to think. Hard to work. Hard to play. There are very few people that I can stand to be around. The rest make my skin crawl.

It is loud in my head. Too loud. Sometimes it is background noise. Now it is very loud. I hate it. Sometimes it gets so loud it hurts. Hurts like an ice-pick being jammed into my head repeatedly. That keeps happening lately. I don’t know why. Emergency meds help, but knock me out. Sometimes K can help. Not really sure how she does it. Thanks K.

When it is bad like that, it makes me cry. I hate that. I try to avoid it for as long as possible. Still, it almost always happens anyway. I know that crying isn’t bad but I hate it. Brings back bad memories. Crying is not bad now but it used to be. It can make everything worse if people are messing with you. Nobody messes with me now. Just my own brain. Ridiculous.

I say that I am an autistic person who does not want to be cured, but when things are so bad, I am not sure if that is true. When I woke up this morning, I was confused and disoriented and it was very loud in my head. I didn’t have enough energy to deal with it. I just wanted to wake up like a normal person does. Sometimes I want to be ‘normal’ so bad. I want to be able to work. I want to be able to play video games. I want to read. I want to be around people easily. I want to be able to make plans ahead of time. I can’t do that now. I never know what life will be like from one minute to the next. I hate that.

I am whining and complaining. I am very lucky in about a million ways but sometimes I have to get bad things out of my head. This morning when I woke up, the only way I could think of was to pound on my head with my fist. I know that is not a good way to do it. But it helps. Like cutting and burning do. I don’t do those things anymore. I think that writing is better than those other ways but you have to be able to think to be able to write. At least enough to get paper, pen, computer, whatever.

Lately it is hard to remember things for more than a second. Worse than usual. Not sure why things are like this now. Probably because there are too many things going on. It happens every time but still I choose to believe that it will be different the next time. It never is. But I can’t give up hope. Things always get better. Then there are too many things again. Then things get bad again. circle circle circle circle circle. 41 years going around that circle. It is all I know. It is not all bad. Lots of good parts too. I am rambling.

Went to the water. It helped a little. Nice day out. If there was a magic pill that would make me better, would I take it? I don’t really know. Anybody reading this who thinks about these kinds of things, would you take it? I am confused.