Perspectives of Autism from My Family

perspective

I have been different from other people for as long as I can remember. Over the years, I have had many different diagnoses, opinions, and treatments that were not quite right. My parents have tried to get me help since I was a little kid, but no one really knew what to do with me.

I was a smart but strange kid. I didn’t understand things, especially people. I didn’t fit in. I thought school was dumb. I thought a lot of things were dumb. Turns out a lot of them are, but many were not as black and white as I thought at the time. It wasn’t until I was an adult that I began seeing shades of grey.

During my early years of school, I barely talked at all and spent a bunch of time in the principal’s office. My teachers and school psychologists thought I could be normal if I tried harder. If I would just be like the other kids, they would like me and wouldn’t be so mean to me. I just wasn’t “applying myself”.

It wasn’t until 5 years ago that I finally learned what is “wrong” with me. I have Asperger’s Syndrome. Autism. I sometimes wonder what would life have been like if we knew that when I was 3 instead of when I was 38? It is hard not to think of all the “if”s.

Would I have been a happy kid? Would I have finished college? Would I have never wanted to kill myself? Would my parents have had a happier and less frustrating life? Would they have had support and not had to figure everything out for themselves? No way to know and generally a bad place to take my brain.

For Autism Awareness Month, I would like to write about autism from the perspective of the people who are closest to me. They have been there for me through the best times and the worst. I think that acknowledging and documenting their experiences is an important part of increasing autism awareness and would like to thank them all very much for answering so honestly and thoughtfully.

I asked 5 questions each to my partner Karen and my parents Gloria and Ron (M&D). Here are their answers:

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First Annual Distraction Awards

I have been very distracted lately! Too many things going on and I can not focus on any of them. Luckily, I have had no problem focusing on distractions. I would like to give recognition to the distractions that have proven to be most entertaining in the ‘First (and possibly last) Annual Distraction Awards’.

Best Web Standards Video to a Bob Dylan Tune


More info and lyrics @ Molly.

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Temple Grandin on AWN Radio

Temple Grandin will be on the AWN Radio show tomorrow morning to give the Autism Women’s Network her first exclusive interview following the Premiere of HBO’s Original Movie which premiered a few hours ago.

Radio show link is: http://www.blogtalkradio.com/autism-womens-network/2010/02/07/temple-grandin-gives-awn-first-interview-re-premie

Interview time: Feb 7th, 2010 at 9am PST – 10am MST – 11am CST– 12pm EST (USA)

Use the following link to calculate your time zone outside USA: http://www.worldtimeserver.com/meeting-planner.aspx

Me and K watched part of it a little while ago and it was really good. Gonna watch the rest of it now :)

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Computer History Museum

I have been at the She’s Geeky conference this weekend at the Computer History Museum in Mountain View. Got to go on a tour of the museum today. There are lots of old computers, some restorations, handheld video games, abaci, calculators, adding machines, and software.

The conference has been very fun. It is well named. Definitely have never been around that many girl geeks before! Tomorrow is the last day. There is a session about asperger’s which I would never have expected, but it was subtitled “the geek syndrome”, so guessing that is the connection. I am very curious. There is also one about Drupal called ‘Show me your back end’. Hopefully they are not both at the same time. Drupal will win. Some pix from the museum:

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Happy Birthday to Me

Harvey Fierstein in Fiddler on the Roof

Harvey Fierstein in Fiddler on the Roof

Today I am 43 and having an awesome birthday. Last night K took me to see Fiddler on the Roof with Harvey Fierstein at the Golden Gate Theater in SF. It was awesome! I think it is possible that he was born to play Tevye. Perfect. I was really wishing my family was there too. We used to listen to the 8-track of Fiddler on the Roof in the car all the time when I was younger.

Not sure what I will do the rest of the day. Kind of happy not having a plan. It is nice getting to spend the day with K :D Going to She’s Geeky for the next 3 days at the Computer History Museum in Mountain View. No idea what to expect, but I love the idea of it! Had to miss Design4Drupal at Stanford last weekend. Went to the first session and then found out I had to work. It would have been a great opportunity to learn from some of the best, but it will also be nice to have some money! Luckily, DrupalCon is in San Francisco this year, so I will still be able to get my fix.

Ok, back to my regularly scheduled birthday now :)

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